Showing posts with label eosinophilic gastroenteritis. Show all posts
Showing posts with label eosinophilic gastroenteritis. Show all posts

Wednesday, January 2, 2013

IVIG for Preston and severe belly pain for Sam

Today was quite the day. Today was the first day back to school for Sam. He got up well this morning and we made it to the bus stop just fine. Then Sophia, Preston and I went to my mom's so Sophia could spend the day with her. Then Preston and I headed into Children's for his IVIG. He was so serious when we arrived. I didn't expect him to remember from only being their one previous time. But I think he did. He would not smile AT ALL initially. He was so very sad when they put the IV in, but they got it on the first try. And they gave him tons of toys to play with so he did have fun. And it all went well. He took a nice little nap and all went fabulously.
We got home just in time for me to make dinner. Sam was a little irritable but was only complaining that he was hungry so I didn't think too much about it. He ate dinner really well and then was in excrutiating pain. He was like writhing in pain on my couch. It was awful to see. He did that before when he had the eosinophilic colitis, and I am prayign to God that it isn't coming back :-( I ended up giving him some papaya enzymes and it seemed to help. The GI doctor on call said it could be a colitis from the description I gave her, but I am praying it was just some fleeting hting

Friday, November 23, 2012

A thankful heart

God has really been speaking to my heart in the last month or so.... It has been so easy to get stressed out and anxious about all that is going on with this handsome little guy of mine....
But as I have kept giving him back to God and focusing on the blessing He has given us God keeps reminding me of the past two plus years... - when I was 19wks pregnant with Preston the doctor's words "the baby is not viable, so we will be saving you." And my Pastor just showing up in the midst of that situation and praying with me, and the peace God gave me... - the anxiety I had about the preganancy and being put on bedrest and not being able to work, and God allowing me to work until four days before P was born. -the computor that showed up on our door step when we were in desperate need of one, with no strings attached -when Sam got his eosinophilic colitis diagnosis, being so overwhelmed, and having an amazing friend start helping me with the research process of cooking for him, and then stocking some things in my freezer for him -the seemingly endless need of help with the kids when there are doctors appointments, IVIG, back issues, etc etc and there seems to always be someone available - the wonderful past year in which our Auntie TeeTee got to be with us unexpectedly.
-the finances have been tight and for some reason (GOD!) my MIL sent home a bag of treats with Matt one night after church. She had no idea that I was anxious because I didn't have snacks to pack in Sam's lunch for school the next day and couldnt get any groceries for two more days.... And she has continued to bless us with snacks! It has been so wonderful -I have been sad with my siblings moving away, sad that my kids wouldn't have all their aunts and uncles around, but I am praising God that He has filled that need with some wonderful Christian aunties and uncles to love and cherish these miracles of mine. -for the love and support that so many friends and family have shown us over and over and over again. I have really struggled as a mom with all we have gone through with Preston. It has been so overwhelming going down this road with another child, and realizing I just can't do it. But in every circumstance God has responded that I don't have to and that He will. He has answered prayers before I have uttered them, He has provided before I knew there was a need, He has blessed in amazing ways. As we continue on this journey with our sick boys, I am reminded over and over and over again of God's love for us, and for His provision in our lives. Even this past august when I hurt my back at work again, I was so upset and frustrated when I started going through the pain and discomfort and inability to care for my kids. The finances are getting tighter. But if I hadn't come out of work then it would have been much more difficult with Preston in the hospital. I feel like this past couple of years has been a true testimony to the song that Laura Story wrote called "Blessing." One of my favorite verses states: "Cause what if Your blessings come through raindrops What if Your healing comes through tears What if a thousand sleepless nights Are what it takes to know You're near What if trials of this life are Your mercies in disguise" This verse speaks to our life right now. We have had lots of tears, and TONS of sleepless nights:-), but in each and every situation God has shown Himself, in new ways. I am thankful for these trials, for the faith that I am gaining because of them, for the faith my children are gaining because of them. God is carrying us through these life situations and there is no place I would rather be.

Friday, September 14, 2012

Not as I had hoped....

So after yesterday I was convinced Preston was all better, that God had healed him and that we were past whatever illness was plagueing him. But starting last night and into this morning he has started having the bad diarrhea again. We are off to the doctor shortly as it has now been more than two weeks that this little guy of mine has had diarrhea. That being said I am ok. I know that God has this completely under control. It is kind of strange, the peace that you get knowing that your worry does nothing. That God has the perfect plan, and my fears/anxiety etc won't change His master plan. That He sees more than I can even fathom and that Preston's life is always in his hands. Now I know that this sounds maybe a little crazy to some of you.... Preston is not deathly ill, but with our history and with all we have gone through with Sam, the thoughts keep running through my head that each of these very frequent illnesses that seem to last forever that he keeps getting is a part of something else. And that is overwhelming if I let it be. But I am choosing to trust my God because He is more than able to provide and care for whatever comes our way. So please continue to pray for my little guy, that whateer is going on in his little body will heal, that his poor bottom won't hurt anymore, and that I can continue to have faith and trust that God has this all in His perfect plan. Sometimes I get sucked into feeling overwhelmed and scared and I want to cry too...
But then I remember to rest in Him. Preston has been strugglng so much to sleep peacefully for the last couple of weeks since he has been sick. He stands/sits etc when he is sleeping or trying to. He had just gone down for a nap and I started singing to him and he layed his head down to go back to sleep. That is kind of how I feel God is talking to me, I start to get anxious/afraid, question whether we are going down the same road that we went down with Sam, and I hear Him say "Rest, in Me." And so I am.... or at least I am trying my very hardest to:-) Pray for all of us to just really rely and trust God right now. Thanks!!! And have a blessed weekend
Psalm 121:7-8 The Lord will keep you from all harm- He will watch over your life; the Lord will watch over your coming and going both now and forever more

Monday, August 6, 2012

Eosinophilic update

Haven't done an update lately.... It has been a roller coaster ride with Eos over the last two months with Sam. We have had a couple of good weeks at the beginning of the summer, followed by MANY MANY bad weeks. Days that were very scary to see him be so uncomfortable. I felt like this was the worst he has ever been. That being said, the last scope I allowed them to do, had him have a clean scope, meaning the Eos was gone. However less than two weeks later, it was (probably) back and much worse. I didn't allow a re-scope as it wouldn't have told us anything we didn't already know. The allergy testing has been unreliable up until the patch testing, which told us about the rice, rye, barley and egg. So once we had the repeat clean scope they said that we could allow him back one of the foods that he tested positive for. He chose eggs. Over a three week time span he had eggs in food, not plain eggs. And initially he was ok, but all of a sudden on week three he started having bloody stools, severe pain, and a variety of other symptoms. One friday night it was so severe I was terrified for him. I have NEVER been that afraid for him. We have been through so much, but that friday was horrible. He was passing all kinds of tissue and mucous. The doctors believe that he probably shed the lining of his intestines over that weekend. He lost about six pounds, and we still aren't back to normal. We obviously took the eggs back out his diet, and won't EVER introduce them back in. And to be perfectly honest I am not sure I want to trial anything ever again. I know that sounds awful but I don't ever want him to have another summer like this. Last week was another bad stomach week for Sam. We had had some time when he was having almost normal stools, but last week they became bloody again. I am not really sure what to think of this new development. We haven't given him anything that he shouldn't have. We haven't played with any of his meds. I guess this is the part of Eos that is most frustrating, things just happen and there is no rhyme or reason and therefore I can't fix it:-( It certainly hasn't been an all bad summer, but on the medical front it certainly has. In addition to the Eos stuff, he also has had a bit of a struggle with IVIG. After his reaction earlier this summer we have switched products to Privigen which seems ok, although after the last infusion he complained of a headache for three days! Poor guy, so I am praying that nothing gets worse with that. But we certainly have had fun amongst the chaos, and have gotten to see and do lots of new things. As we are edging towards first grade with this guy I am praying for health and happiness and no more curve balls thrown our way

Friday, June 29, 2012

Back to regular stuff....

Gosh it has again been such a crazy week! Sammy has had a horrible week GI wise, but since I was playing the commenting challenge I haven't even been keeping track, so since this is my "medical journal" here is what's been going on the last week.... MONDAY: was a little better than the weekend in regards to pain, but stools were massive and very strange. Bloody and seemed like tissue or something....was eating fair but not great TUESDAY: relatively the same as monday, although this day he started complaining that he was really cold again. I unfortunately didn't really think about checking a temp that day (Dumb!!!) but he never felt overly chilly. But when I talked to PCP she said that people can have a low temp when they are fighting infection too... WEDNESDAY: Pain and discomfort is back. Eating is worse, but is drinking well. His energy was decreased today, and continued to complaining of being cold. This day his temp was 96.1 orally. Stools continue to be huge and shredded, with some streaking of blood... THURSDAY: Was a rough day. Sammy was complaining of nausea as well as pain. Poor guy. This is a new complaint for him as he hasn't had complaints of nausea with the colitis before, or at least he hasn't voiced it before. He essentially laid under a big fuzzy blanket all morning, and then seemed a little bit better. We had to go pick Sophia up from VBS and went to the lake for a bit. At the lake he did swim and play with the Paradis family, but certainly wasn't his normal self there. When we got home he still complained he was chilly, but asked for some chicken noodle soup and actually ate it. So praise God for some progress! He was super sensitive and emotional, which he always is when he doesn't feel well.... FRIDAY: Today started out ok. He had another relatively normal stool too. He didn't eat anything but I got him to drink some water, and a little juice. He really wanted to go to VBS so I let him go with Sophia. He had a great time, and then ate a pretty good lunch and was really active. We then went to my mom and dad's as today was my dad's birthday. He was ok there, although he didn't really run around much and just wanted to sit and watch everyone else around him. But he didn't complain of pain while there. When we came home he ate a really good dinner!!! I am so thankful for that. And then again complained of being cold, and wrapped up in a thick fuzzy blanket, even though it is 90+ degrees out and we don't have air conditioning.... I did talk to Dr Zella this afternoon. He isn't quite sure of what is going on with my little mistery man. He was certainly happy to hear that he seems to be getting better but he isn't sure what caused it. So we have an appointment monday morning and will go from there. The poor little guy, I just wish I could take it all away from him. As a mom, I have watched him struggle health wise, essentially his whole life. And although we keep "adding diagnosis" to his little list of medical issues, I still don't think any of this is making him better. It's like we are just scratching the surface and that we don't have the big "aha!" moment that ties everything together. WE don't know so much about him medically, and so when these weird things keep happening no one is sure how to deal with him. And so he is a little boy who has so much pain and discomfort and I am his momma that watches sadly:-( Praying for a good weekend for my sweet little guy and hopefully some answers ASAP or even better for our amazing God to heal him!!! Have a blessed weekend!!!

Friday, June 22, 2012

? Eosinophilic Colitis (again) and water fun

So yesterday we went to the lake with our friend Meg and her kiddos. It was a great day. Sam really ralleys to have fun with his friends. It is a great distraction for him. So we spent almost the entire day there. I heard back from Sam's primary GI doctor today, he started him on a new medication that they use to treat ulcerative colitis. It should help the inflammation and therefore help the pain. Unfortunately it takes a few days or so to see if it is going to help. But for today he is so miserably uncomfortable. I was contemplating bringing him to the emergency room here locally, although I am sure they would take one look at him and transfer him someplace else. So instead we are trying to stick it out at home and I called the on-call doctor at Mass General. She was super helpful and kind. She said it sounds like the Eos. colitis is back. And reinterated (because they all have to remind me) that having the Eos in the colon is so uncommon, that it is just a complicated process of figuring out the cause and course of treatment. She said to give him tylenol, a warm bath (yeah sure in this 90+ degree weather) and a warm compress to his belly. So we are trying and praying to see if this helps. But here are the pics from yesterday at the lake:-) My beautiful little princess modeling her new Puddle Jumper life vest Mr P with "Auntie" Meg. This lady is such an amazing friend and sister to me. I am so blessed to have her in my life. A truly special, inspiring beautiful woman of God. Sam and his buddy Noah. Sam and Noah each have had some pretty complicated medical histories. They have a special bond because of it. Miss Sophia swimming with Liz, Liz is a sweet teen that helps babysit Meg (and my friend Tipp's kiddos, Noah, Emily, and Caleb) This was Preston's really first time swimming. I am shocked at how much he enjoyed it. He didn't at all care about the temperature. We just sat him right down in the water. And he started splashing and had a blast. My mom got him this cute little crab float and he loved it, although he was trying to get farther into the water the whole time he was in it. Sam and his favorite summer time toy, a squirt gun:-) Sophia and Caleb (this is Tippany's youngest) Sam and Ben (Ben has a twin brother, Josiah) had a blast swimming with their goggles. It is amazing to me how quickly they just figure out swimming. Obviously I wouldn't want him to swim out over his head, but he did so well after just yesterday being back in the water, from all winter of not swimming.

The roller coaster ride continues....

Ugggh felt like we were on the up swing with Sam, but unfortunately we are back in a slump with him. I had actually emailed his GI at MGH over the weekend because he had had such significant pain for the last several days. I received an email back on tuesday essentially saying to keep the eggs out of the diet and as long as there was no bleeding we were ok. Fast forward to wednesday and thursday mornings, wednesday he had a small amount of blood and then throughout the rest of the day tiny amounts of blood. Yesterday he had a large amount of blood:-/ and is feeling pretty crummy. Poor guy! I just feel so bad for him. He can never catch a break. He is not eating, and was miserable last night. This morning he is a little better I think. Of course he isn't eating so that might be why.... Waiting to hear back from GI. Any parents of EoS kids out there that have intermittent bloody stools? I would love to find someone to talk to (compare notes with) about our EoS kids.....

Wednesday, June 20, 2012

Eosinophils and GI Plan

SO I sent Sam's doc an email yesterday regarding his recent abdominal pain. He essentially wants us to remove the eggs again from his diet and see how he does. So that is the plan for now. This is such a roller coaster ride. I still don't believe the eosinophilic colitis is Sam's actual problem, I believe it is a symptom of something bigger:-( It is so frustrating when the doctors say things like "well this isn't really typical, but we all know that Sam doesn't play by the rules." Yeah I get that my kid is complicated and doesn't fit the typical EOS mold, but that doesn't mean I don't want him better. I so desperately want him to not have pain so often. To be able to digest food, and not have discomfort. To start gaining weight and not be so skinny. To have a healthy glow to his skin. To have energy and a good well balanced nutritious diet that he enjoys....etc etc. So for now eggs have to come back out, we will see if that makes any difference. I don't have a really clear understanding of how long I am supposed to wait for this to get better.... But for now please keep him in your prayers

Monday, June 18, 2012

MORE DOCTORS

Gosh I feel like this roller coaster is starting to go too fast again. In January when we got the eosinophilic diagnosis I was caught off guard, but then in changing the diet and things improving I feel like we have gotten into a grove again. But in the last week or so Sam has been having low body temperatures again (in the 95 degree range) and it has been warm. So now we are going to be getting in with MORE doctors. We did this low body temp thing before, when he was just stopping breathing at night, and so I am anxious becuase of that. His primary talked about it being an infection causing the low temp, or possibly some type of endocrine disorder. So I guess that that will be our next course of action. I know that God totally has all things under control but still I am overwhelmed. Something also is going on with PReston GI wise. I am trying to figure out how much of the eosinophilic stuff is hereditary. He has had more than his fair share of GI issues since birth. But this past week he has been puking (alot) and I think refluxing again. Which GI seems to think is unlikely that it is reflux because it doesn't usually get worse again after six months. I spoke with the on call doc over the weekend who recommended mylanta to see if that seemed to help, I am on the fence about whether it did or didn't. He is waking up frequently at night, coughing, spitting up, burping a ton and now three times has had this respiratory type symptoms that come on quickly and resolve quickly, he gets wheezing and congested and then it clears after like ten minutes. Weird... So I called GI this morning, they want me to wait out the week with him like this to see if anything changes. To see if it is a "post viral" delayed emptying of his stomach. Meaning maybe he had an illness and it kind of slowed down the motility in his stomach, so give it a few more days to see if it gets better. Sam seems to be ok today, and he had a little bit of egg yesterday! I made homemade brownies for him, with his ingredients, and eggs. He had two within the course of the day and seems fine! I am so happy about this. I am super frustrated though because I feel like I always have to be the bad guy with him:-( I made the chocolate raspberry cake for Matt for Father's Day, and Sam wanted a piece. Of course, I would love for him to have a piece, but I also would love for him to not be sick or have GI symptoms. But both my MIL and Matt wanted him to have some! It makes me so crabby! Yes they ask so he sees them asking me, if I say no I am looking like I am just being mean, he doesn't understand why I don't want him to. If I say yes then I am telling him that it is ok to eat whatever he wants and that we don't have to do what the doctor says, but beyond that I am also telling him that he doesn't really need to follow a specific diet, so when he is away from me then what will he do??? Uggghhh! So frustrating! On friday I watched my friend Megs kids (3 of 4). We had such a fun day. Ben and Josiah are six and are great friends of Sams. He absolutely loves playing with the boys. Gracie is eight I think:-) She was such a little helper that day. She did so much to help and keep all the younger kids happy.

Friday, June 8, 2012

Uggghhhh! Eosinophilic Colitis is SOOO COMPLICATED

SO I totally don't love it when the doctors responses to something that is going on with my kids are "Hmm interesting." "That's suprising." "I wonder why?" So they were really surprised by the most recent biopsy results that they had after the dietary changes. They are also wondering what dietary changes have made a difference and what ones haven't. They are also wondering about the antifungal medication he was on and if that had any affect on the EC. So essentially this appointment today led them to say that hey lets give him back one thing that we have taken out of his diet and see what happens. They said to call in six weeks (sooner if symptomatic) and let them know how he is doing. So out of the list of things he has been off of, they let him choose one thing to add back into the diet. So he picked eggs. I for one am thrilled that he picked eggs, because now we can have breakfast as a family again, with eggs and not have him feeling sad about it. But I don't love the fact that they will add and take out foods over the next several weeks/months and want to keep rescoping him:-( I am in such the beginning stages of learing about EC that I don't even know if this is the typical course of action, or if this is just an MGH specific treatment plan. If you are out there and you have lots of experience with eosinophilic colitis, how often is your child scoped? What are the parameters used to determine when it is necessary? Also my next question is: is this hereditary? My youngest is 9months and has been diagnosed with a milk protein and soy allergy. I came off those things so that I could continue to nurse him. He has been a whole new baby. When I was speaking with them today about Sam, I asked about it. One of the nutritionists made the comment that alot of kids with milk and soy allergies go on to have EoE! I hadn't heard that before and am obviously praying that God prevents this from happening. But didn't know if anyone has had experience with that? Sam was 46inches tall and 43lb3oz today. He has lost weight since the last doctors appointment there which was about a month ago. I feel like we are in another one of his crazy cycles becauss of the fact that he was late for IVIG and I think he just has a generalized feeling of sickness. SO when that happens, he is whiny miserable and eats poorly. SO I am praying that since he had his IVIG on tuesday that he turns around and starts feeling better. I am so excited that we will be able to do the IVIG locally again. I am just trying to get everything all situated with policies and procedures for this new IVIG product. Gosh I worked last night in labor and delivery and assisted with a delivery. Even though I have been a nurse for nearly TEN YEARS now, it never ceases to amaze me the miracle of life and birth. And not only in the maternity side of things, when I have worked pedi or in the ER, I am amazed ALL the time about how miraculously we are made. Heres some cute pics of my munchkins....

Thursday, June 7, 2012

Eosinophilic Clinic and last day of preschool

Today is Sophia's last day of preschool at Sunshine Garden. I have been so blessed to have both Samuel and Sophia attend a year of school there. I was hoping for a few more years, but Karen the teacher is retiring this year. She has put her heart and soul into Sunshine Garden for the last twenty eight years, and hundreds of kids and their families have been blessed because of it. Last week Soph went on a filed trip to Coggshall with her class. She had a wonderful time. THey played on the playground, fed geese, and hiked around the pond. Soph has made some good friends in her class, and I love that we all share our faith. Some of these friends are moving on to Bethany Christian school with us in the fall. It won't be the same as Sunshine Garden but I am looking forward to her thriving in another school. Tomorrow we have our follow up for Sam at the Eosinophilic clinic. I am not really sure what to expect from this appointment. I am kind of on the fence as to what I want the next step to be. Children's and MGH treat Eos disorders differently. MGH just goes in and eliminates a lot of food all at once in the hopes of getting rid of the culprit immediately, which is exactly what happened for SAm. The unfortunate thing, is that we took out so many things and now we don't know what is the true cause. The way Children's opporates is that they take out one thing at a time, and keep close tabs on symptoms.... So if you have any Eos disorder what was the way your hospital went along with diagnosing/treating it? Today Sammy has a performance at his school. It is an end of the year kindergarden program. He is really excited about it. I can't wait to see him. It is so hard to believe my baby is finishing up his first full year of school, and that he will soon be a first grader. WOW!!!! I still haven't heard back from Immuno, so I am praying I hear today. I think that since it is a new product we will have to get all kinds of stuff reapproved to do it out here again. I am praying for smooth sailing though and that all goes well

Wednesday, May 30, 2012

IVIG Update and BIOPSY RESULTS!!!!

SO not even sure if I wrote on here about Sam's reaction to his IVIG a couple of weeks ago. Anyways due to that we had to go in and see his immunologist today. I will be honest, the plan for us was that the may IVIG was going to be the last one if Sam was illness free the last couple of months. I had that so stuck in my head and was so looking forward to our break, but there were too many things stacked against us:-( So not only are we not done, we are going to try a new product and we have to go back into Boston Children's to do it. I love it there, I really do. But financially it is so hard to be there. Parking is astronomical and they don't feed him while he's there, so then there is buying food, gas to get there, babysitters for the other munchkins, etc etc. I am hopeful that we can switch products have Sam do well with it, and then switch back to our local hospital. His immuno was also concerned about his skin and is sending us to a dermatologist. We actually arent able to get into that doctor until July, but that is ok. WE have tons of appointments going on in the next few weeks. And the BEST NEWS OF THE YEAR: Sam's repeat biopsies for the eosinophilic disorder have come back negative!!! I am beyond thrilled and so thankful. So the dietary restrictions have worked and now his gut is healing! I am just so excited about it. So we will meet with the specialist team, to see where we go from here next week. His regular GI seems to think that we may be able to add back a food that we have taken out. But that will all be decided next week. He weighed 44lbs exactly today so he has gained the weight he lost back almost completely, and is up to 47 inches I think!!!

Tuesday, May 22, 2012

Colonoscopy and Endoscopy (AGAIN)

So Sam had another colonoscopy/endoscopy procedure yesterday. This one was to follow up on the one that they had don in january with the eosinophilic colitis diagnosis. They are hoping that there is a decrease in the amount of eosinophils related to the dietary changes that we have made. I am praying for a significant improvement. I guess the biopsies showed more than 40x eos per high power field. So I am praying that there isn't nearly as many. The procedure itself went very well. It was getting to that point that was quite the challenge. We had to be there for 12pm. We arrived on time, and waiting for a little bit until they came and brought him back to the pre-procedure area. While we were in that area he started complaining about how hungry he was and I felt so bad for him. They actually requested that we let another child go ahead of us because the other child was doing really poorly. So I agreed. It delayed us by HOURS!!! Then I was really feeling badly for Sammy. But he was such a trooper. He was thrilled to be playing video games while he was waiting. I guess that is the benefit of not having a Wii, or any of the other gaming systems, he is beyond thrilled to use them when he gets the opportunity whether he is hungry or not. It was so funny watching him play, he was totally sucked in and Preston was enjoying watching him too. They allowed me to go into the procedure room with him until he was asleep. They actually allowed him to pick the scent that was in his anesthesia mask and he chose root beer. So as he was drifting off that is what he smelled. Once he was asleep I gave him a kiss and they walked me out. After that they put an IV and attempted to get blood from him. They were able to get the IV in on the first try, but they had extreme difficulty getting the blood drawn. They said it appeared that his blood was too thick. They eventually got it praise God. And then they proceeded with the procedure. So then Dr. Z took several biopsies and I should get the results of those next tuesday. Poor guy felt awful on the way home and vomited. He also had some belly pain as well. He had a little bit of a lowgrade temp as well. But woke up feeling better this morning, although he is still having loose stools. Poor little guy... Thanks so much for your prayers for him!!! I am so thankful that my friend Sara was able to come with me yesterday so that I didn't have to go by myself. I brought Preston with me and Sara was my partner in crime for the day. She kept P while I went in with Sam. She distracted Sam, she was a comic distraction for me, and she dealt with the vomiting on the way home. Thank you Auntie Sara!!!

Sunday, May 20, 2012

FINALLY BACK!!!

Gosh it has been a crazy couple of months. Thankfully I got a new computor for Mother's Day and am now going to try and catch up on all the posting that I am behind on. But for now I will just post some new pics of the kids, and ask for your prayers as Sam is going back into MGH tomorrow with Dr Zella in order to have colonoscopy and endoscopy. They are looking to see if the dietary changes that they have recommended have made any difference with the eosinophilic colitis. I am praying that they have....but I also wondering how we will know which foods are the culprits since we took so many out all at once. I am just hoping that we can slowly introduce foods back into his diet again after all of this craziness. He has been such a trooper. He was able to have a light breakfast today but has been unable to have anything else besides clear liquids ever since. But he has been so great about it. We were so blessed to be able to go to a wonderful church service today. I was actually able to sit through a good portion of the sermon today as well because Preston fell asleep on Matt. Usually the little guy wants to eat right after the song service and I miss some of the sermon every week. This week I was able to hear most of the preaching and didnt have to leave until almost the end. Matt has been working so hard on the new bathroom and it is just about complete. It looks amazing. I will have to post some before and after pictures this week if I can find the old ones. He has worked so tirelessly on it. It is so nice to finally have it done and be able to enjoy it. Preston and Sophia both seem like they are suffering with symptoms similar to croup. Please be praying for them for quick healing and no need for medication or doctor appointments. And also please be praying that Sammy doesnt get it.