Tuesday, January 31, 2012
Sammy did so awesome!!! He was so brave. Unfortunately the doctor was WAY BEHIND on monday. We were supposed to have the procedure at 12:30pm but didn't end up having it until after 2pm. While we were waiting Sam got to play video games with Matt. Since we don't have them at our house it was a really special treat for him and he loved it.
Sunday, January 29, 2012
Oh my poor Sammy. So yesterday I told him that he would be having the colonoscopy and endoscopy procedure tomorrow. He was perfectly fine with it once I told him that it was Dr Zella that was doing it. He drank the drinks that he was supposed to like a champ.
Saturday, January 28, 2012
Sam and Sophia have been asking for MONTHS to take a bath with Preston. I have always been very hesitant and haven't allowed them to do it. But today I had the idea to put the baby tub in the tub with him in it and then put water in the regular tub for Sophia. So they were "taking a bath together" like she so desperately wanted. It was cute, they both were smiling and happy to watch each other. Preston has really started to kick and splash alot in the tub:-) And our cat Lewis was super curious about all the commotion in the bathroom so he came in to watch too. Please pray for Sammy as he has his colonoscopy/endoscopy on monday. I am trying so hard not to be anxious and to remember that God is in control. But unfortunately for some reason I am scared about this. I know that God will be with him through it all, and that He will protect him, but I am still anxious. I just keep thinking back to the last colonscopy where he had the hematoma and subsequent hemorrhage. SCARY!!! So please be praying for him, and for us that we can stay focused on God and His power. Also please pray for the prep for this, that it doesn't hurt Sammy's tummy. Thank you!!!
Friday, January 27, 2012
Goodness! This dairy and soy free thing is certainly going to be a challenge. I am so hopeful that I can continue to feed Preston, but concerned that my supply will decrease with such a drastic diet change. I have been doing lots of research and have found some really good resources out there for recipes and stuff. So it is just a matter of getting over the hump with what I like to eat versus what I can eat. Sam is having a relatively good week. He is getting ready to celebrate his 100th day of school next week, so had to make a project of something with 100 pieces. We actually made a balloon wreath:-) with 100 water balloons, not filled though. It is so fun to see him learning and counting by tens now, he made the balloons into 10 groups of ten and then each grouping was a color pattern. He is learning so much this year. And is really enjoying it. I am so thankful that he has remained so healthy this year, I was so nervous at the start of the year, but he has done phenominally. He is so carefree and silly lately. This picture is probably one of my favorites ever, because it is so silly and is the perfect picture of his silliness these days...
Thursday, January 26, 2012
Sometimes it is so easy to get caught up in the every day battles/struggles of life. So often I find myself feeling frustrated and overwhelmed with where I am at in this life. Wishing and hoping to be a better wife and mother, but not completely knowing how. Desiring to be a better follower of Christ, but not completely pro-active as much as I should be... And then there are days when I realize how unbelievably blessed I am. How God has just filled my life with so much that I don't deserve, and surrounded me with amazingly wonderful people. Today was a day that started out with me feeling tired and overwhelmed and wishing I could just have some help to get everything done. I was feeling like I was going to fail miserably and then deal with crabbiness at home. But then God stepped in and reminded me of what really matters and changed my whole attitude. And I am so thankful. Today as I was walking out the door to bring Sophia to preschool, someone from our church showed up and said "I heard you could use a new computor. Here you go." And proceeded to hand me a laptop and then left! The person very clearly asked that I not say who gave it to us, and that it is just between us. So here is this completely unexpected way that God has blessed us AGAIN! And then I went and had a meeting with the pastor of my church, and I am always so encouraged and uplifted after meeting with him. He always gives me new insights and encourages me to think deeper. And I am so thankful that I was able to go today. And then someone else randomly told me that they have some coupons for me for the almond milk that I have been drinking. AGAIN unexpected blessing! I look around at my life and see the craziness, sickness and so many unknowns, but more than that I see God's love and provision for us in all circumstances. He always seems to provide in unexpected ways and I am so very grateful. Psalm 100:4-5 4 Enter his gates with thanksgiving and his courts with praise; give thanks to him and praise his name. 5 For the LORD is good and his love endures forever; his faithfulness continues through all generations
Wednesday, January 25, 2012
Hard to believe how big my little guy is getting and how fast time is flying by! I can't believe he is almost five months old! I can't believe that he has grown more than five inches and more than double his birth weight! Since last wednesday life has been pretty stressful, with the bloody stool. But thankfully as I have changed my diet it is appearing that he is starting to feel better and getting back to his old self. He has really taking a liking to the exersaucer this week, as well as anything and everything he can get in his mouth. He loves his gymini, and loves to watch Sam and Soph run around him. He is feeding still VERY FREQUENTLY, but I am hoping that he will start being able to space out his feedings, once the stomach issues are resolved. The other thing that has become very prevalent this week is him sticking out his tongue! He will actually even imitate it if he seems someone else do it! When we went to GI last week they recommended some other specialists so I am awaiting anxiously those appointments as well.
Tuesday, January 24, 2012
Sammy got his IVIG yesterday. And after last months EIGHT sticks for IV access I wasn't at all looking forward to it! He as always is such a trooper, and the nurses are so phenomenal that he was happy to be coming. Even if he was going to have several IV attempts. He had four attempts today, which is definitely better than last time but I still hate that he has to go through it and that he has just had to become so accustomed to this. We got a wonderful "Therapeutic Play Kit" from the company that makes his IVIG. And so he loves to bring IGI V with us. We call him "I Gee" and Sam loves to give him his medicine too. We were also very fortunate to have a friend come with us which was wonderful since I had all three munchkins. Sam is getting so big! He is now 43.6 lb (19.8kg)!!!
Monday, January 23, 2012
Our wonderful photographer stuck our CD in the mail in December, and it took a month to get here!!! Thankfully she gave us the christmas card prints prior to this, but I just wanted to share these with you. They came out absolutely amazing. My friend Shannon is fabulous. If you are ever in Massachusetts you should look her up...Or if you want to fly her to you she is totally worth it:-)
Saturday, January 21, 2012
So after working all night thursday I drove into MGH with Preston yesterday. I must say how pleased I am that they were able to get us in so quickly. Dr V didn't even decide to send us until wednesday afternoon and we got seen yesterday! God totally opened that door for us. Preston did fairly well on the way in. Shortly before we got there he got hungry and was complaining but other than that he did great. So we got to see Sam's GI doctor Dr Zella. I really really like him a lot. He does such a good job and is so kind. He really listens to what I have to say and takes my thoughts/feelings/opinions into consideration. AFter listening to everything that is going on with Preston, he really just believes that this is allergy related!!! I am so thankful, and have been praising God for his kindness. Dr Z believes Preston is probably allergic to milk and soy. So he wants me to come off of food containing those items. It is certainly going to be a challenge but I am confident that I want him to received breast milk as long as possible. So starting todya I have eliminated soy and dairy from my diet. Which essentially means MOST of what I used to eat is eliminated. But that is ok. This adventure will produce healthier eating habits for me, and prayerfully a much happier content baby who doesn't seem so uncomfortable all the time:-) PReston did get weighed today and he weighed 13lb6oz, and was 25 inches. Exactly what he was at his PCP at his well child check up. So I got nervous because that means he hasn't gained anything in a few weeks. SO hopefully this week he will
Thursday, January 19, 2012
Oh my goodness, they called to get us in to see the pedi GI specialist at Mass General and they got us in TOMORROW MORNING!!!! I am so thankful and thrilled! I am scared about what they will say, but I know that regardless of what is said that God is in control!!! Please be praying for us tomorrow, as I start this journey with Preston. That I will stay focused on God, and on His will for our lives. That I won't let my mother's heart, distract me from serving and loving and praising our God in the midst of this trial. These are some of my favorite photos of my little guy...