Saturday, February 18, 2012

Allergy Testing and Eosinophilic Gastroenteritis

Ugggh so poor Sammy had the allergy testing on friday at Boston Children's with our wonderful immunologist/allergist Dr B. We really like him and he has been so good to us. We also discussed the proposed trialing off of IVIG next month, which he is pushing back:-( I am not surprised but am disappointed. We will touch base in May and he will decide then if we can stop the IVIG for the summer to see how he does. Sam was 44lbs!!! As far as the allergy testing went, they injected him with 32 different (common) foods on his back to see if he reacted to them. I kept praying that whatever he was allergic to would be something that wouldn't affect him too terribly, and that it would be something we could easily take out of his diet, and replace with something equally as yummy. Everything I have read about EG (eosinophilic gastroenteritis) has pointed hugely to the correlation of food allergies. So all I kept thinking was that when we did this testing he was going to be allergic to everything: dairy, soy, gluten, nuts, beef, eggs, fruits etc...SO IMAGINE MY SHOCK WHEN ALL OF THE ALLERGIES WERE NEGATIVE?!?!?!? SO I am absolutely completely baffled at this point. I know that God is in control and that He has the perfect plan for Sam. But what that plan is I don't know. It totally caught me off guard seeing everything be negative. I don't know what this means though, because I don't know how we can make him better or treat this, if it isn't taking the foods out of his diet....So please pray for my boy, and for the doctors caring for him that they would have wisdom in deciding how to treat him. Although we have now had blood and skin prick testing that are all negative we are now going to try patch testing. I am awaiting the scheduling department at Children's to schedule that for us. That is when they place the allergen on a little disc that they stick to his skin for 48hrs to see if there is a reaction after a prolonged period of time.
If you look closely you can see the 32 pokes on his little back!:-(
Super Sammy's response to hearing that the testing was negative. And you know what he said: "I prayed that all the tests would be negative!". Love seeing his faith blossoming:-)


  1. You know, ivy had all the allergy testing done too because she had contact dermatitis with food introduction and terrible gut issues and everything came back normal. In the end we had to take everything out and reintroduce it. We knew she was okay with rice and with pear and that she had issues with the milk enzyme. That's how we figured out that a gluten and lactose free diet helped her stomach and also how we found that she is very allergic to fish (salmon). Sometimes I wonder if the quirky immune system messes with things like allergy testing.

  2. So allergy testing is not an exact science. One can be reactive to an antigen with allergy tests that show nothing.
    Eosinophilic gastroenteritis is commonly dealt with by utilizing an elimination diet.

    Allergy testing is food for thought only (unintended pun).

    My best,
    Aidan (EGE) and Sadie's daddy