First Foods

The day little Miss Paisley turned 6 months I baked her some sweet potatoes for her first meal. She had seemed interested in food for a little while but not overly so we hadn't even tried anything yet. I love being able to make something wholesome and nutritious and know that there are no preservatives or chemicals in it. I have found lots of great websites for baby food making, but my absolute favorite is Wholesome Baby. This site goes through absolutely. everything that I had questions about. It talks about each food group, grains, dairy etc. There is discussions about when and how to feed. Allergy info, contamination info, etc etc. If you are looking for a great site, look no further. This first batch of food that I made included sweet potatoes, peas, apples, squash, and plums. And then different combinations with those foods. I love to bake the foods as the foods taste much better in my opinion and the nutrients remain. She loved her first meal. Now if she was just a bit bigger in this high chair it would be perfect.

I'm a big girl now!!!

Paisley is doing so incredibly well. They were thinking about taking her out of the incubator tomorrow but she kept her little self so warm today that they had to take her out of it today so she wouldn't be too hot!!! She continues to gain weight well and is up to 4lb 5oz. Auntie Chantal came and loved on her today which was so nice. It is so nice to be surrounded by so much love and support. The kids at home are being loved on by tons of people too. I think it is still really hard, wanting to be at home and wanting to be with Paisley but we are just so blessed with so many people willing to help. I was really struggling last Friday feeling so torn between Paisley and my big kids. Sam had IVIG (which praise God Auntie Paula went with him to), Sophia was having tons of pain in her mouth and had an emergency dentist visit.... Preston is just missing things being normal at home.... I just want to be everywhere at once.

Welcome to the world Miss Paisley :-)

I am getting as much snuggle time in with my girl as possible.... She is doing well today. I will continue her story later tonight :-) For now enjoy these pictures of my little beauty

IVIG and more pregnancy issues

Unfortunately the unit where Sam gets his IVIG is closing soon. I am still so heartbroken about it. It has been so wonderful to go and have the same nurses always care for him in the same room, with the ability to have friends come and spend time with him during the infusion. I am still unsure of what we are going to do next because of the unit closing. This time we went and they got the IV right in and auntie Sara stayed with Sam while I dropped Preston and Sophia with mom as I had an OB appointment. Sam had a blast with auntie Sara, and P and Soph enjoyed their time with Meme and grandpa. My OB appointment didn't go as well as I had hoped that it would. The doctors are getting more and more concerned as am I. My blood pressure was fantastic which is such an answer to prayer. But now I am retaining fluid, and when the doctor reviewed the lab work from the ER, she realized that my liver function tests are already declining :-( She said I am so high risk and have so many issues that I am making them all nervous. And said that I need to call with ANY weird feeling that I have. We are now switching to twice a week visits with the doctor. I don't have any idea how I am going to fit that all in.... So I will go in on Monday, if not sooner. Please be praying that we can keep this little one in for at least six more weeks.

A trip to the ER...

So I had to make a trip into the ER today. I initially contacted my primary care doctor and told her how I was feeling. She told me that I needed to contact my OB. When I called my OB she told me that I needed to go to the ER. SO I got the kids packed up and dropped off at the babysitter and then drove to the ER. When I got there they immediately took me right in, even though there was a waiting room full of people. I was so thankful. When they initially put me on the monitor my blood pressure was elevated, and my heart rate was very high. They did all the labs to make sure I wasn't developing pre-eclampsia and HELLP syndrome again. Praise God, as of right now I am not. My heart however is not liking being pregnant. It is working very hard, and too fast. They gave me some meds to decrease the heart rate, and I will be seeing a cardiologist on Tuesday. Uggh I am trying to not be discouraged but it is so hard. It has always been around 27 or 28 weeks that things start going wrong. As I will be 28 weeks tomorrow I am feeling so overwhelmed. I know that God is in control and that the outcome will be okay regardless, but I just wish it didn't have to be high risk and scary. :-( Please be praying that my heart can sustain this pregnancy for at least another 8weeks, and that no other issues develop. And please continue to pray that this little sweetie grows healthy and strong :-)

20weeks

Wow! It is surreal to think that I am already half way through this pregnancy. In all actually I am more than half way as they will deliver me at 36 weeks if I make it that far. I am feeling really ok, I am certainly exhausted ALL THE TIME but I think that might have something to do with three munchkins to care for as well. I am so very thankful that I have found a wonderful OB office and I feel so safe and comfortable with them. I haven't ever really felt "comfortable" since I almost died when I had Sam. My whole pregnancy with Sophia I felt like a ticking time bomb, waiting for everything to go wrong. With Preston I knew I was in the best possible place, but it was so far, and it was such a big practice etc etc. This time I have been seeing the same physician although I will be seeing a different one this next time. But with each visit they have been completely aware of my history and very keen on knowing exactly how I have been feeling. My blood pressures have been great, and they have been doing a ton of blood work. I don't know the results of this past weeks results yet, but they have all been fine prior, and the doctors will call with any changes. I have continued to lose weight, but it is starting to slow down. I started this evening with some right upper quadrant pain, which does certainly have me anxious. But I am praying and believing that it has nothing to due with my liver and that all is ok still.... I will wait it out at least through tomorrow unless it gets worse, and then will notify the doctor. At 20 weeks the baby is about ten inches long from head feet and is about 10 and a half ounces! It still amazes me about the miracle of life. If you think about 10ounces and you think about 10 inches, and then you think about all the organs and muscles and amazing things God created in there, it is hard to not be amazed. The baby is already producing meconium and practicing swallowing. It truly is a miracle of life :-) Psalm 139:13 For you created my inmost being; you knit me together in my mother’s womb.

Baby Weber #4

Matt and I went to the perinatologist and talked all about all my risk factors, and how this pregnancy is going. We had a lengthy ultrasound and visit with both the high risk and regular OB doctors. We actually found out what this little munchkin is, but since they aren't quite 100% we aren't sharing it. But everything looks wonderful! I wish I was one of those people that went into an ultrasound and was so excited about it. But I am not :-( I am always so concerned that something is going to be wrong with the baby and this time was no exception. First I was concerned that there was no heartbeat, and then I was concerned that there was a cardiac or brain anomaly. As the ultrasound went on and on, I just kept thinking that the technician was seeing things wrong and needed to make sure she had good pictures of everything. I feel terrible because I know this anxiety is totally from the devil, and that God has not given me a spirit of fear. But I did struggle for a good portion of the ultrasound. But I am rejoicing in the fact that the baby looked wonderful on this ultrasound and that the size is perfect, even though I have continued to lose weight. MAN! I wish I could lose weight like this when I wasn't pregnant. I am not quite sure how to get a good picture of the ultrasound pictures, but here they are. There is a picture of the baby giving a thumbs up, one of the baby sucking the thumb, and then a picture of what looks to be a BIG foot! I have a foot picture of all of my baby's, so I was very excited to get this one too. So we would love to have a name that starts with the letter "P". Got any good ideas that you would like to share? For girls I don't like : Penelope, Priscilla, or Paige. For boys I don't like Peter, Paul, Parker, or Patrick. This letter is hard! But I am hopefully that we can find something :-) Can't believe I am already 19weeks! God is so amazing! I am so thankful that things are going smoothly. And praying that they continue

All kinds of news.....

First we heard back from Genetics, and the two different syndromes that they tested Preston for have come back negative! I am so thankful, I really didn't believe he had either one, but when the specialists are questioning it, it made me a little nervous. There really isn't anything else they can do as of right now. They said if he acquires any more diagnosis then to call them and let them know as it may trigger them to think of something else to test for. Otherwise we will return in a year, at which time they are hoping they will have more information to do the right type of testing. We also were told a bit back that Preston needed a fecal transplant, or that he would need to have his colon removed and have a permanent colostomy. So needless to say I have been struggling quite a bit with being anxious, even though I KNOW THAT IT WILL BE OK! I do know that it will be ok, I know that God's plans are sovereign and that no matter what the doctors say, that God is completely 100% in charge. But right now, I don't fully know what the answer to this situation is. I don't know what God's answer to my prayer is, I do know that He is encouraging me so much, so many people have reached out to us and have been praying for this sweet little guy of mine. We heard this past week that officially the health insurance has denied the transplant, and therefore the doctor has been talking about the colostomy again, so scary :-( Right now there is an investigational medication that they are using in adults to treat adults with this, so they are thinking about the possibility of trying it on Preston. I also have been doing my own research and have found a couple of doctors who are doing oral immunoglobulin therapy to treat it. So our wonderful pediatrician and our immunologist are researching those options. Please be praying for wisdom and patience for all people involved. And certainly that God's glory will be revealed in whatever the outcome will be :-) a I am now 17 weeks pregnant. Feeling ok, but HUGE! I am not really, and haven't gained back any of the weight I have lost from puking yet. I am officially wearing maternity pants/bottoms, but can still wear my regular shirts. I feel ok, extremely tired most of the time and nauseous a lot. My blood pressures have been good so far. My lab work has been great. I have seen high risk B already as well as the regular OB. I certainly didn't feel good when the high risk OB from Brigham and Women's Hospital in Boston where they have over 1,000 births a year, said "I think I remember you, you were a very scary patient!" Yeah definitely didn't give me a good feeling :-( I know God is in control of this little miracle baby too, and I am praying fervently for a healthy full term baby with no complications :-)

Baby Weber #4...

I can't even begin to tell you how fun it was to actually video tape my mom's reaction to this new little blessing that God has blessed us with! Her reaction was absolutely priceless!!! I am so blessed to have a mom who is so loving and compassionate, so giving and kind. She wears her heart on her sleeve, and totally made me feel that she was beyond thrilled and excited for us. It was so wonderful to share this news with her and to get her reaction on film. And my dad too, he is not quite as demonstrative as mom, and essentially just said "wow" but you could see the joy in him. So so blessed. The kids were so excited too! It was fun watching Sam trying to figure out what Preston's shirt actually meant. And then when I showed them the ultrasound picture they were even more excited. As I have already been to high risk OB, and to the doctor and had a few ultrasounds already I have already been anxious and seeking God for His peace through this pregnancy. It is so hard to be positive and realize all the complications that I have had and in the medical community will probably have again. When I went to the high risk Ob, she said that I was "very scary", so not what you want to hear from a very educated, and specialized doctor who works at an amazing high risk hospital... But I am focusing on God and His blessing, He has given us this baby, and He will see us through. I would beg of you to please join us in prayer for this baby and for myself that God's glory will be revealed in the whole process. Our official due date is September 22, and we are 14 weeks along now.

Our BIG news....

We are expecting again! I still am kind of in shock about it at times. We have been saying for quite a while that Preston was our "grand finale" but God had better plans for us. We actually found out in january while Preston was sick and in the hospital. As you can imagine I was exceedingly nervous at that time, thinking about the possibility of another immunocompromised child, or just the sheer logistics of having another high risk pregnancy and all the fear/anxiety that comes along with it. So far things are going well. The high risk ob doc actually said I was a scary patient :-( Totally not something I really wanted the specialist to say, but I understand that I am very high risk and that I have had lots of complications in the past. I am trusting and placing my faith in God, knowing that He will be walking down this road with us. We actually had decided to keep it a secret until today, as it was Sophia's birthday and that way we could tell a majority of our family members in person. That plan however didn't work. My sisters that live up here both had to work, so they weren't there. And Matt's brothers family have an illness going through their house so they weren't there either. We had Preston wear a shirt that said "Big Bro Preston" on it. We had Sam actually read the shirt, and try to figure out what it meant. It was so cute to see the understanding come across Sophia and Sam's faces when they figured out what we were saying. My mom had the BEST REACTION ever! She was so excited and happy. I of course then started getting all these questions about my working and everything from her, she is so nervous and just wants happy and healthy for all of us. I will post pics tomorrow....