Wednesday, March 6, 2013

Updates....P's 18 month check up

So hopefully soon I will have my computor back so I can catch my blog back up.... But for now Sammy is sick. I brought him to the doctor today, and essentially he has lots of swollen lymph nodes, a red throat, lots of fluid in his ears, nasal congestion and sinus congestion. Due to his C diff history we aren't starting antbiotics until he gets worse. So for now he is fairly irritable and crabby. And due to the platelet issue I can't give him most decongestants or antihistamines, and all I can give him for the sore throat is tylenol and he is saying that that doesn't help much. So prayers greatly appreciated. Preston is officially 18months old! I still can't believe how far we have come in the last six months with him. It has certainly been a roller coaster ride, but I am so blessed to be on this ride with him. We are surrounded by wonderful family and friends who have supported us and helped in countless ways throughout the hospitalizations and doctors appointments. We have amazing doctors on our team. And so many more wonderful people loving on this special guy of mine. He is really starting to take off with his babbling. He now says: Mom, momma, mommy, dad, up, hi, want, more, ear, eye and a few other random things he says once and then not again. He knows many of his body parts and points when asked: head, hair, eyes, ears, mouth, teeth, nose, tongue, neck, belly, arm, fingers, leg, toes, knee. He is starting to recognize the color yellow. He absolutely loves playing with any child, but especially with Sam and sophia. He is a climber for sure, and has taken to jumping now too. He is always falling and bumping his head on something, the poor guy. Eating continues to be a challenge, some days he eats ok, and some days are a complete flop. I am not sure if it is due to feeling poorly or if this is just a phase. The fecal transplant is still a possibility but it isn't guaranteed yet. We just have to wait and see how he does once we stop the several months of antibiotics. His weight today was 23lb 12oz and his height was 33inches. Tomorrow both boys are following up with GI. It will be an interesting appointment, as Sam has been having some stomach pain again, as well as two episodes of blood in his stool recently. Prayers for safe travels please as the weather isn't supposed to be that great :-(

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