The Sound of Music

I was so thrilled to spend a special afternoon with Sophia and my mom recently. Last weekend we went to see the musical "The Sound of Music." Sophia was so excited to have a "mommy day" where we got all dressed fancy. She was so cute. My mom joined us as well, and she asked me to ask my mom if she would dress fancy! We had such a wonderful time! The musical was absolutely phenomenal. I would love to see it again. Sophia just loved the children and the singing. The youngest Von Trapp child in the musical was only five years old! She did so wonderfully. It was a beautiful day. I am so thankful that I got to spend this time with my mom and Sophia making such a wonderful memory.

P is still struggling and Abby and Bre come to visit

Preston continues to have a really tough time. His appetite is horrible and he is extremely irritable. Poor guy had a horrible night last night. He was completely inconsolable for quite a while in the middle of the night. Daddy prayed over him and we sang Jesus loves me over and over again until we got him calmed down. I brought him in to our pediatrician today and she is very concerned about how much weight he has lost. Unfortunately the doctor that did the transplant is out of the country and unreachable at this time. The on call for him has ordered a bunch of tests. So I will get that done in the morning. They are testing to see if the intestinal infection is back. I am just so overwhelmed with all of this. I feel like he is doing worse than he was before he had the transplant. I keep telling myself that it is just a hard recovery period for him but I am starting to wonder.... I heard a wonderful song today, that has just kept me focused on God and His goodness. The song is by Hillsong and it is called "Healer". One line of the song says " I know your my healer, I believe your more than enough for me..." Claiming God's healing for my little guy!!! The man who is singing this song in the video is actually battling cancer... Auntie Chantal, Abby and Bre came over to play the other day. I just love these three so much! I so wish that we could see each other more often and that our schedules/location weren't so difficult to work with. Preston and Abby had so much fun together, and Bre and Preston kind of butted heads a little bit :-)

Gorgeous Day here and can't help but ache for Oklahoma.....

My heart aches for Oklahoma. As I woke up this morning surrounded by those I love and with a gorgeous day outside, I can't help but think of those that are hurting or have been lost in Oklahoma. It makes you really appreciate and not take for granted each day that we are blessed with. I know I complain a lot, and so often get so overwhelmed with medical stuff, but I really and truly am so incredibly blessed. My God is amazing, my family loves and supports us, Matt's parents are helpful, our church is filled with loving and Godly people who pray for us and encourage us, and God meets every NEED that we have and then some.... Today as I have all the windows open and praise music playing I am praying for Oklahoma. I can't even begin to imagine the devastation and heartache. But I know that my God can meet them there in their devastation. And my prayer is that that is exactly what happens, that people turn to Him and that He carries them through this horrible nightmare. Oklahoma you are not alone, know that God is with you, and that there are people around the world lifting you up in prayer

Boston Pops and Symphony Hall

Matt took me on a surprise date last night! We went to Symphony Hall and heard the Boston Pops play with Keith Lockhart conducting. It was a wonderful surprise for a mother's day gift. Yesterday was crazy as Sophia was having tons of abdominal pain and the doctor thought there was something wrong with her intestines. We had an emergency x-ray at the time Matt wanted to be leaving for the evening! Of course it is always hectic when it comes to my life. But it was so wonderful. We actually got engaged at the Boston Pops Christmas concert in 2000. We hadn't been back since. It was so fantastic. We also got to eat dinner uninterrupted by little people! All in all a wonderful day! Unfortunately no pics to prove it because I didn't have my camera. Sophia seems to be doing much better today although still having intermittent pain. Not sure exactly what is going on with her yet. She has had some blood in her stools but not consistently. Waiting for lab work to come back as well as the final reading of the xray from yesterday. Hoping to get to the playground and get some pics today.... We shall see :-)

We have some REALLY BIG news to share this weekend! I am starting to get excited to share it. We are celebrating Sophia's birthday with our family and friends on saturday. Silly girl keeps changing her mind about themes, but this past week she has decided on a butterfly theme which should be relatively easy I think. And since we have done some butterfly things before it shouldn't be too bad. We are all hanging in. I finally have gotten back to work since my back injury in august. I am not up to my full 12 hour shifts but we are getting there. Please continue to pray for my back that it can tolerate being on my feet and not cause so much increased discomfort. I got something in the mail today that appears to be an approval for something for Preston. The only issue is I don't know what it is for. I would be beyond thrilled if it was for the fecal transplant but I am not sure. I will be calling tomorrow to see what this is all about. What a blessing that would be if it had already been approved :-) He has been doing ok this week, not eating terribly well but hasn't been horrible. His diarrhea has improved slightly and his mood has defitely improved. I took the kids and two of their friends to see the school play of "The Little Mermaid" the other day. They had so much fun and the elementary school kids did an amazing job. I hope that my kids will be interested in that type of thing as they grow. They both seem to really enjoy watching plays and musicals...

Thankful

So I called my friend Meg and shared all my stress and anxiety with her about this new complication. She invited the kids and I swimming and was such an amazing support. I have been so blessed by Meg, over and over again. And through MEg have met another amazing woman named Timpany. Between the two of them, they are comforting and consoling, and totally letting me lean on them. It is so nice to be able to let my guard down for a few minutes and admit how nervous I am, and to be supported through those feelings. Thanks ladies! You both are answered prayers for me,
While we chit chatted the kiddos had a blast with Meg and Timpany's kids. They did lots of swimming, sand castle building, and eating:-) Here are a few pics, I certainly have been slacking in the photo department lately.

Not sure if you have heard this song before or not, but it speaks so loud and clear to me about this time in my life and what God has for me. We may not understand the struggles we have, and it is so easy to get discouraged and frustrated, but in the end God's will prevails, and what He has is always a blessing. This is Laura Story's song "Blessings"