Immunology Update...

So I just can't get out of my own way these days. I just keep thinking back to when Sam was diagnosed with his immunodeficiency and how scary that was for us. And when I was thinking about it for Preston, my thought was that if it was the same, we could handle it and it wouldn't be a big deal.... Fast forward to now.... We saw Sam's immunologist this week. And although Preston has low T cells, B cells, and no response to some of the vaccines he has been given, it sounds like treatment will be similar to Sam. Although they each have different levels that are off, IVIG is treatment for both. It will stink to have to be driving back into Boston all the time again, and it will stink to spend whole days doing the IVIG for P and then another day for Sam, but at least this is familiar territory... Sam was fourteen months when we started down this road....

Looking back at these pics reminds me of how long ago we started this journey with Sam. But also how much the Lord has blessed us with so many wonderful friends, family, nurses, doctors and other staff throughout each stage of the process. We don't have a definite plan with Preston yet. They revaccinated him today and will recheck all his blood work in a month. If he continues to show no response, and if he continues to get sick in the next month, then we will probably be looking at IVIG, beginning in late november or so. We saw DR Baxi at Children's and he is amazing. He said that he believes we are headed down the same road as Sammy as far as the need for IVIG, but that he wanted to very clearly know that prior to starting. So vaccinated today and will redraw all labs in a month, and I am to keep track of his illnesses very closely between now and then. Sam and Soph put him in Sophia's baby crib the other day...